Continuing our series celebratring the fifth anniversary of the Butterwick Children's Hospice, Katie Barlow meets a brave young lady.
WITH a twinkle in her eye and a mischievous grin, it is hard to imagine Helen Carter could be different from any other ten-year-old.
A huge fan of S Club Seven, having collected all the band's magazines and memorabilia, Helen manages to remain positive, despite suffering from a degenerative genetic disease.
The disease, ataxia telangiectasia immunoglobulin defficiency and progressive lymphopenia affects her coordination and balance, which will continue to deteriorate.
Helen lives in Wheatley Hill, County Durham, with her parents, Simon and Joy.
Despite her problems, she lives life to the full.
She can be regularly seen at sports clubs, mixing with other children.
Mrs Carter attributes some of this to the care Helen has received at the Butterwick Hospice over the past 18 months.
She said: "Helen can be quite shy at first, but once she overcomes that she is very bubbly and outgoing.
"Spending time at the hospice has really helped her confidence. They give her independence and freedom and time to just be herself.
"All the staff are very good, not just with Helen but all the children, and help them relax.
"It is a very calming atmosphere, and although Helen has only been for three or four short stays, she has really benefited from it."
Mr and Mrs Carter both readily agree they were apprehensive when Helen stayed at the hospice for the first time and admit they made full use of the parents room.
Mr Carter said: "I think I was more apprehensive, but the staff really do put you at ease. If there is a problem, you know they are there to handle it and they know you are only a telephone call away.
"They have done wonders with Helen, and she really enjoys her time there. They take the children out on day trips and are able to give them time one-to-one.
"It is also nice for us as we get a small break and, although we do miss her terribly, it is nice to have time to do things as a couple.
"I have so much praise and admiration for the staff and I really would urge people to dig deep into their pockets in a bid to ensure this facility is always available."
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